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Fetal medicine

Non-invasive prenatal testing: Assessing the availability and accessibility of information available to the pregnant population within the Republic of Ireland

While there is apparent demand for NIPT and it is available in Ireland, there is disparity between providers on the type and quality of information they offer online.

Authors

Gabriela McMahon, Sarah Kennedy, Hadas Miremberg, Keelin O'Donoghue

Year
2024
Journal Name
European Journal of Obstetrics, Gynecology, and Reproductive Biology (EJOG)
Category
Journal Article
Keywords
Fetal anomaly, Prenatal screening
Full Citation

McMahon G, Kennedy S, Miremberg H, O'Donoghue K. Non-invasive prenatal testing: Assessing the availability and accessibility of information available to the pregnant population within the Republic of Ireland. European Journal of Obstetrics and Gynecology and Reproductive Biology. 2024;302:149-154. https://doi.org/10.1016/j.ejogrb.2024.09.014.

Link to Publication
https://doi.org/10.1016/j.ejogrb.2024.09.014

Abstract

Ireland has no national screening programme for fetal anomalies, although non-invasive prenatal testing (NIPT) is available from out-of-country providers. We aimed to describe the availability of NIPT in Ireland and the quality of information available online from NIPT providers. We examined all healthcare facilities’ websites and reviewed private health insurance directories from April to May 2023. Four of the 19 maternity hospitals/units in Ireland had information on NIPT on their websites, with three including an explanation of NIPT, testing accuracy, and costs (€380-480). Twenty private clinics led by obstetric consultants advertised NIPT online, of which 17 clinics included an explanation of NIPT, testing accuracy, and costs (€380-€650). Twenty-nine other providers, including ultrasound clinics, direct-to-consumer laboratory testing, and General Practitioners, advertised NIPT; 18 of these included an explanation of NIPT, testing accuracy, and costs (€179-€630). While there is apparent demand for NIPT and it is available in Ireland, there is disparity between providers on the type and quality of information available. Difficulty sourcing information, costs and location of providers are likely barriers to accessing NIPT. A national screening programme for aneuploidy should be considered to ensure both equitable access to and reliable information about prenatal screening.

Pregnancy Loss Research Group

Pregnancy Loss Research Group, Department of Obstetrics & Gynaecology, University College Cork, Fifth Floor, Cork University Maternity Hospital, Wilton, Cork, T12 YE02, Ireland,

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